Quality Use of Medicines in People Living with Dementia: Determining research priorities

This project aims to identify the top 10 unanswered quality use of medicines questions for people with dementia. These questions will be generated and prioritised by Australians living with dementia, carers, and health care providers (clinicians).

Quality use of medicines means using medicines safely and effectively to get the best possible health outcomes. It also means only using medicines when they are needed. People living with dementia represent a diverse adult health population, encompassing a range co-morbidities and socio-cultural backgrounds. There are many potential areas of research that could improve quality use of medicines for people with dementia.

Historically, health research questions have been led by either drug companies or researchers, with little involvement from clinicians or consumers. This project aims to determine which questions are important to people with dementia and their care team, to prioritise research in these areas and ensure that outcomes of research are directly relevant to the care of people living with dementia. This will lead to improving how medicines are used which in turn will improve health outcomes in people living with dementia.

This Priority Setting Partnership is funded by an AAG Research Trust/Dementia Australia Research Foundation - 2019 Strategic Research grant. This study is being conducted in collaboration with researchers from the University of Sydney, Monash University and the University of New South Wales and in partnership with the James Lind Alliance, Australian Association of Consultant Pharmacy, Australian Association of Gerontology, Australian College of Nurse Practitioners, Australian Nursing and Midwifery Federation, Consumers Health Forum of Australia, Leading Age Services Australia, National Aboriginal and Torres Strait Islander Health Worker Association, Speech Pathology Australia and The Society of Hospital Pharmacists of Australia. This project is supported by a Steering Group which is made up of health care professionals and consumers. Information about the Steering Group members for this project can be found here.

What questions and concerns do you have about medicine use in people living with dementia?

If you are a person living with dementia, a carer of a person living with dementia or a health care professional interested in helping shape our research questions, please follow the links to the surveys:

Consumer survey for people living with dementia and carers, advocates, family and friends of people living with dementia. Click here to access the survey

Clinician survey for healthcare professionals (or healthcare professionals in training) and staff members of healthcare organisations that provides care to people living with dementia. Click here to access the survey

If you have any questions or would like to be sent a hard-copy version of the survey, contact us at: priorities.dementia@unisa.edu.au